***Information is personal and is kind of detailed about my health so if you don't wish to know this much about me then stop reading. ***
In December I was finally diagnosed with IC -
Interstitial Cystitis. It's a condition that effects the bladder and causes painful, chronic, inflamed conditions. I started noticing changes to my health last August at the end of our internship in San Francisco, CA but didn't think much of it because I had a history of UTI's (urinary tract infections). Before heading back to Utah, I went to a hospital in downtown SF and that ER doctor told me he couldn't do anything for me and I walked out of an ER with instructions to take ibuprofen. Are you kidding me I was in intense pain? That's a whole other story and one that gets my husband and dad angry.
When we got back to Provo, Ut, so Romulo could finish up his BA at BYU, I found myself going to 2-3 different doctors pretty much every other week. They all seemed to treat me like a lab rat and put me on all types of medicines. It wasn't until I got in touch with a doctor I had gone to in VA and started emailing with her that things started to look more focused. She gave me good information and gave me direction to go on. That is were I found my God sent; Sue Dahl. She is at the Women's Clinic at Intermountain Health Care at Utah Valley Regional Hosptial in the office of Susan Steffen. Sue not only took care of my GYN but my IC problems. I'm not 100% cured from IC but have things stable and under control. It took about 9 months for my conditions to calm down and for me to feel "normal" again. December was when I was offically diagnosed with IC by another doctor; an urologist. And that experience wasn't too pleasing but I knew I could get through it knowing I would get an answer and not just an experiment.
So, my treatment now is taking
Elmiron 3x a day,
VESIcare (to help my bladder calm down) and doing other self-care treatments that Sue and I came up with on a trial and error experiment.
(Elmiron is the only oral medication that the FDA has approved for my condition. Sad but true and it takes about 3 months to kick in. It took me 3 months to kick in but still its not a magic fix you still have conditions it just lessens the pain.) That's really what this condition is all about; try it for a week and see. I also try to control my condition by environment and diet. I only drink bottled water, I use dye free fragrance free soap, deodorant, etc. and wear 100% cotton under garments. Diet: I try to not eat acidic, spicy, and the list goes on.
Clothes are another issue, I have to be careful with the crotch area because if clothing is too tight I can get a flare up. I try to wear fabrics that are more forgiving in that area but most of the time I don't really know if it will mix well with my body until I wear it for half a day and not just trying it on in the dressing room. Sometimes I think I need the expert help of Clinton and Stacy from
What Not to Wear. Because anyone who knows me knows I enjoy fashion.